The CICADA Study
We will be updating our files shortly! But in the meantime we hope you will attend our celebration event on 17th October 2024.
Join us for a day filled with excitement, creativity, and innovation at our final project event. This in-person gathering will take place at De Morgan House, 57-58 Russell Square London WC1B 4HS, where you can witness the culmination of months of hard work and dedication. Don't miss this opportunity to celebrate with us and discover the amazing things our participants have been working on, listen to our special guests and experience our workshops. See you there!
Our agenda is in the registration link. This is an all day event (9.45am-5.15pm) with refreshments; we expect many people will pop in and out through the day. There are workshops and methods discussions as well as reports of our findings.
What we did
We have explored the pandemic experiences of people with a long-term condition or disability from minority ethnic groups, with a focus on health and social care.
Many people from minoritised ethnic groups, especially those with underlying (chronic) conditions/disabilities, face barriers to accessing, networks of emotional and practical support, health and social care and vital ‘resources’, such as medicine and food. The COVID-19 pandemic has worsened their plight, and post-COVID syndrome has emerged in many of those who got COVID.
Our 18-month study learned from the experiences of people with chronic conditions (including long covid) and disabilities who are from different ethnic minority groups.
Our ultimate aim was to develop simple strategies, guidelines, recommendations and easily adopted actions and interventions to improve future experiences, health and wellbeing outcomes of these groups. We are still working on this. In 2022 we held an exciting theatre event to share some findings with members of the public. You can see a 5 minute version of this here and a longer version here. You can also read about it in our blog.
Our approach to the larger project has used various methods – surveys, interviews, workshops, literature review.
One of our outputs is a toolkit for other researchers working with participants from minority ethnicities who are living with long term health conditions. You can download this here.
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